Health behaviours reported by adults with congenital heart disease across 15 countries.

Christina E. Holbein; James Peugh; Gruschen R. Veldtman; Silke Apers; Koen Luyckx; Koen Luyckx; Adrienne H. Kovacs; Adrienne H. Kovacs; Corina Thomet; Werner Budts; Junko Enomoto; Maayke A. Sluman; Maayke A. Sluman; Chun-Wei Lu; Jamie L. Jackson; Paul Khairy; Stephen C. Cook; Shanthi Chidambarathanu; Luis Alday; Katrine Eriksen; Mikael Dellborg; Mikael Dellborg; Malin Berghammer; Malin Berghammer; Bengt Johansson; Andrew S. Mackie; Samuel Menahem; Maryanne Caruana; Alexandra Soufi; Susan M. Fernandes; Kamila White; Kamila White; Edward Callus; Shelby Kutty; Shelby Kutty; Philip Moons; Philip Moons; Philip Moons

doi:10.1177/2047487319876231

Health behaviours reported by adults with congenital heart disease across 15 countries.

Christina E. Holbein, James Peugh, Gruschen R. Veldtman, Silke Apers, Koen Luyckx, Koen Luyckx, Adrienne H. Kovacs, Adrienne H. Kovacs, Corina Thomet, Werner Budts, Junko Enomoto, Maayke A. Sluman, Maayke A. Sluman, Chun-Wei Lu, Jamie L. Jackson, Paul Khairy, Stephen C. Cook, Shanthi Chidambarathanu, Luis Alday, Katrine EriksenMikael Dellborg, Mikael Dellborg, Malin Berghammer, Malin Berghammer, Bengt Johansson, Andrew S. Mackie, Samuel Menahem, Maryanne Caruana, Alexandra Soufi, Susan M. Fernandes, Kamila White, Kamila White, Edward Callus, Shelby Kutty, Shelby Kutty, Philip Moons, Philip Moons, Philip Moons

University of Missouri-St. Louis

Research output: Contribution to journal › Article › peer-review

Abstract

 Background
 Health behaviours are essential to maintain optimal health and reduce the risk of cardiovascular complications in adults with congenital heart disease. This study aimed to describe health behaviours in adults with congenital heart disease in 15 countries and to identify patient characteristics associated with optimal health behaviours in the international sample.
 
 Design
 This was a cross-sectional observational study.
 
 Methods
 Adults with congenital heart disease (   n   = 4028, median age = 32 years, interquartile range 25–42 years) completed self-report measures as part of the Assessment of Patterns of Patient-Reported Outcomes in Adults with Congenital Heart disease - International Study (APPROACH-IS). Participants reported on seven health behaviours using the Health Behaviors Scale-Congenital Heart Disease. Demographic and medical characteristics were assessed via medical chart review and self-report. Multivariate path analyses with inverse sampling weights were used to investigate study aims.
 
 Results
 Health behaviour rates for the full sample were 10% binge drinking, 12% cigarette smoking, 6% recreational drug use, 72% annual dental visit, 69% twice daily tooth brushing, 27% daily dental flossing and 43% sport participation. Pairwise comparisons indicated that rates differed between countries. Rates of substance use behaviours were higher in younger, male participants. Optimal dental health behaviours were more common among older, female participants with higher educational attainment while sports participation was more frequent among participants who were younger, male, married, employed/students, with higher educational attainment, less complex anatomical defects and better functional status.
 
 Conclusions
 Health behaviour rates vary by country. Predictors of health behaviours may reflect larger geographic trends. Our findings have implications for the development and implementation of programmes for the assessment and promotion of optimal health behaviours in adults with congenital heart disease.

Original language	American English
Journal	European Journal of Preventive Cardiology
DOIs	https://doi.org/10.1177/2047487319876231
State	Published - Sep 17 2019

Keywords

Heart defects
congenital
health behaviour
patient-reported outcome measures
prevention
risk factors

Disciplines

Endocrinology, Diabetes, and Metabolism
Critical Care
Physical Therapy
Medicine and Health Sciences

Access to Document

10.1177/2047487319876231License: Unspecified

Cite this

Holbein, C. E., Peugh, J., Veldtman, G. R., Apers, S., Luyckx, K., Luyckx, K., Kovacs, A. H., Kovacs, A. H., Thomet, C., Budts, W., Enomoto, J., Sluman, M. A., Sluman, M. A., Lu, C.-W., Jackson, J. L., Khairy, P., Cook, S. C., Chidambarathanu, S., Alday, L., ... Moons, P. (2019). Health behaviours reported by adults with congenital heart disease across 15 countries. European Journal of Preventive Cardiology. https://doi.org/10.1177/2047487319876231

Holbein, CE, Peugh, J, Veldtman, GR, Apers, S, Luyckx, K, Luyckx, K, Kovacs, AH, Kovacs, AH, Thomet, C, Budts, W, Enomoto, J, Sluman, MA, Sluman, MA, Lu, C-W, Jackson, JL, Khairy, P, Cook, SC, Chidambarathanu, S, Alday, L, Eriksen, K, Dellborg, M, Dellborg, M, Berghammer, M, Berghammer, M, Johansson, B, Mackie, AS, Menahem, S, Caruana, M, Soufi, A, Fernandes, SM, White, K , White, K, Callus, E, Kutty, S, Kutty, S, Moons, P, Moons, P & Moons, P 2019, 'Health behaviours reported by adults with congenital heart disease across 15 countries.', European Journal of Preventive Cardiology. https://doi.org/10.1177/2047487319876231

@article{21bd06a8a5fe4b59a11d8d198e86ba12,

title = "Health behaviours reported by adults with congenital heart disease across 15 countries.",

abstract = " Background Health behaviours are essential to maintain optimal health and reduce the risk of cardiovascular complications in adults with congenital heart disease. This study aimed to describe health behaviours in adults with congenital heart disease in 15 countries and to identify patient characteristics associated with optimal health behaviours in the international sample. Design This was a cross-sectional observational study. Methods Adults with congenital heart disease ( n = 4028, median age = 32 years, interquartile range 25–42 years) completed self-report measures as part of the Assessment of Patterns of Patient-Reported Outcomes in Adults with Congenital Heart disease - International Study (APPROACH-IS). Participants reported on seven health behaviours using the Health Behaviors Scale-Congenital Heart Disease. Demographic and medical characteristics were assessed via medical chart review and self-report. Multivariate path analyses with inverse sampling weights were used to investigate study aims. Results Health behaviour rates for the full sample were 10% binge drinking, 12% cigarette smoking, 6% recreational drug use, 72% annual dental visit, 69% twice daily tooth brushing, 27% daily dental flossing and 43% sport participation. Pairwise comparisons indicated that rates differed between countries. Rates of substance use behaviours were higher in younger, male participants. Optimal dental health behaviours were more common among older, female participants with higher educational attainment while sports participation was more frequent among participants who were younger, male, married, employed/students, with higher educational attainment, less complex anatomical defects and better functional status. Conclusions Health behaviour rates vary by country. Predictors of health behaviours may reflect larger geographic trends. Our findings have implications for the development and implementation of programmes for the assessment and promotion of optimal health behaviours in adults with congenital heart disease.",

keywords = "Heart defects, congenital, health behaviour, patient-reported outcome measures, prevention, risk factors",

author = "Holbein, {Christina E.} and James Peugh and Veldtman, {Gruschen R.} and Silke Apers and Koen Luyckx and Koen Luyckx and Kovacs, {Adrienne H.} and Kovacs, {Adrienne H.} and Corina Thomet and Werner Budts and Junko Enomoto and Sluman, {Maayke A.} and Sluman, {Maayke A.} and Chun-Wei Lu and Jackson, {Jamie L.} and Paul Khairy and Cook, {Stephen C.} and Shanthi Chidambarathanu and Luis Alday and Katrine Eriksen and Mikael Dellborg and Mikael Dellborg and Malin Berghammer and Malin Berghammer and Bengt Johansson and Mackie, {Andrew S.} and Samuel Menahem and Maryanne Caruana and Alexandra Soufi and Fernandes, {Susan M.} and Kamila White and Kamila White and Edward Callus and Shelby Kutty and Shelby Kutty and Philip Moons and Philip Moons and Philip Moons",

note = "Background Health behaviours are essential to maintain optimal health and reduce the risk of cardiovascular complications in adults with congenital heart disease. This study aimed to describe health behaviours in adults with congenital heart disease in 15 countries and to identify patient characteristics associated with optimal health behaviours in the international sample.",

year = "2019",

month = sep,

day = "17",

doi = "10.1177/2047487319876231",

language = "American English",

journal = "European Journal of Preventive Cardiology",

}

TY - JOUR

T1 - Health behaviours reported by adults with congenital heart disease across 15 countries.

AU - Holbein, Christina E.

AU - Peugh, James

AU - Veldtman, Gruschen R.

AU - Apers, Silke

AU - Luyckx, Koen

AU - Kovacs, Adrienne H.

AU - Thomet, Corina

AU - Budts, Werner

AU - Enomoto, Junko

AU - Sluman, Maayke A.

AU - Lu, Chun-Wei

AU - Jackson, Jamie L.

AU - Khairy, Paul

AU - Cook, Stephen C.

AU - Chidambarathanu, Shanthi

AU - Alday, Luis

AU - Eriksen, Katrine

AU - Dellborg, Mikael

AU - Berghammer, Malin

AU - Johansson, Bengt

AU - Mackie, Andrew S.

AU - Menahem, Samuel

AU - Caruana, Maryanne

AU - Soufi, Alexandra

AU - Fernandes, Susan M.

AU - White, Kamila

AU - Callus, Edward

AU - Kutty, Shelby

AU - Moons, Philip

N1 - Background Health behaviours are essential to maintain optimal health and reduce the risk of cardiovascular complications in adults with congenital heart disease. This study aimed to describe health behaviours in adults with congenital heart disease in 15 countries and to identify patient characteristics associated with optimal health behaviours in the international sample.

PY - 2019/9/17

Y1 - 2019/9/17

N2 - Background Health behaviours are essential to maintain optimal health and reduce the risk of cardiovascular complications in adults with congenital heart disease. This study aimed to describe health behaviours in adults with congenital heart disease in 15 countries and to identify patient characteristics associated with optimal health behaviours in the international sample. Design This was a cross-sectional observational study. Methods Adults with congenital heart disease ( n = 4028, median age = 32 years, interquartile range 25–42 years) completed self-report measures as part of the Assessment of Patterns of Patient-Reported Outcomes in Adults with Congenital Heart disease - International Study (APPROACH-IS). Participants reported on seven health behaviours using the Health Behaviors Scale-Congenital Heart Disease. Demographic and medical characteristics were assessed via medical chart review and self-report. Multivariate path analyses with inverse sampling weights were used to investigate study aims. Results Health behaviour rates for the full sample were 10% binge drinking, 12% cigarette smoking, 6% recreational drug use, 72% annual dental visit, 69% twice daily tooth brushing, 27% daily dental flossing and 43% sport participation. Pairwise comparisons indicated that rates differed between countries. Rates of substance use behaviours were higher in younger, male participants. Optimal dental health behaviours were more common among older, female participants with higher educational attainment while sports participation was more frequent among participants who were younger, male, married, employed/students, with higher educational attainment, less complex anatomical defects and better functional status. Conclusions Health behaviour rates vary by country. Predictors of health behaviours may reflect larger geographic trends. Our findings have implications for the development and implementation of programmes for the assessment and promotion of optimal health behaviours in adults with congenital heart disease.

AB - Background Health behaviours are essential to maintain optimal health and reduce the risk of cardiovascular complications in adults with congenital heart disease. This study aimed to describe health behaviours in adults with congenital heart disease in 15 countries and to identify patient characteristics associated with optimal health behaviours in the international sample. Design This was a cross-sectional observational study. Methods Adults with congenital heart disease ( n = 4028, median age = 32 years, interquartile range 25–42 years) completed self-report measures as part of the Assessment of Patterns of Patient-Reported Outcomes in Adults with Congenital Heart disease - International Study (APPROACH-IS). Participants reported on seven health behaviours using the Health Behaviors Scale-Congenital Heart Disease. Demographic and medical characteristics were assessed via medical chart review and self-report. Multivariate path analyses with inverse sampling weights were used to investigate study aims. Results Health behaviour rates for the full sample were 10% binge drinking, 12% cigarette smoking, 6% recreational drug use, 72% annual dental visit, 69% twice daily tooth brushing, 27% daily dental flossing and 43% sport participation. Pairwise comparisons indicated that rates differed between countries. Rates of substance use behaviours were higher in younger, male participants. Optimal dental health behaviours were more common among older, female participants with higher educational attainment while sports participation was more frequent among participants who were younger, male, married, employed/students, with higher educational attainment, less complex anatomical defects and better functional status. Conclusions Health behaviour rates vary by country. Predictors of health behaviours may reflect larger geographic trends. Our findings have implications for the development and implementation of programmes for the assessment and promotion of optimal health behaviours in adults with congenital heart disease.

KW - Heart defects

KW - congenital

KW - health behaviour

KW - patient-reported outcome measures

KW - prevention

KW - risk factors

UR - https://journals.sagepub.com/doi/10.1177/2047487319876231

U2 - 10.1177/2047487319876231

DO - 10.1177/2047487319876231

M3 - Article

JO - European Journal of Preventive Cardiology

JF - European Journal of Preventive Cardiology

ER -

Health behaviours reported by adults with congenital heart disease across 15 countries.

Abstract

Keywords

Disciplines

Access to Document

Other files and links

Cite this