Contributors to disease-specific health knowledge in adults with congenital heart disease: A correlational study.

Joshua Saef; Sandeep Sodhi; Kristen M. Tecson; Vanessa al Rashida; Jong Mi Ko; Kamila S. White; Philip A. Ludbrook; Ari M. Cedars

doi:10.1111/CHD.12668

Contributors to disease-specific health knowledge in adults with congenital heart disease: A correlational study.

Joshua Saef, Sandeep Sodhi, Kristen M. Tecson, Vanessa al Rashida, Jong Mi Ko, Kamila S. White, Philip A. Ludbrook, Ari M. Cedars

University of Missouri-St. Louis

Research output: Contribution to journal › Article › peer-review

Abstract

<div class="line" id="line-19"> Objective</div><div class="line" id="line-61"> Growth in the adults with congenital heart disease (ACHD) population represents a challenge to the health care infrastructure. As patients with chronic disease are increasingly held accountable for their own care, contributors to disease&hyphen;specific health knowledge, which are known to correlate with patients' participation in care, merit investigation to design patient&hyphen;focused interventions.</div><div class="line" id="line-63"> Design</div><div class="line" id="line-65"> We conducted a single&hyphen;site, cross&hyphen;sectional study of ACHD patients. Investigators retrospectively gathered clinical data as well as psychometric and health status assessments completed at the time of enrollment.</div><div class="line" id="line-67"> Outcome Measures</div><div class="line" id="line-69"> We investigated the impact of clinical and psychological variables on Leuven Knowledge Questionnaire for Congenital Heart Diseases health knowledge composite scores (HKCS). Variables with significant associations were considered in a stepwise multivariable regression model to determine which combination of variables jointly explained variability in HKCS.</div><div class="line" id="line-71"> Results</div><div class="line" id="line-73"> Overall HKCS was associated with the number of prior cardiac surgeries ( <i> r  </i>  = 0.273; 95% CI: 0.050&hyphen;0.467;  <i> P  </i>  = .016), perceived stress ( <i> r  </i>  = 0.260; 95% CI: 0.033&hyphen;0.458;  <i> P  </i>  = .024), SF&hyphen;36 emotional well&hyphen;being ( <i> r  </i> = −0.251; 95% CI: −0.451, −0.024;  <i> P  </i>  = .030), history of noncardiac surgery ( <i> P  </i>  = .037), cirrhosis ( <i> P  </i>  = .048), and presence of implantable cardioverter&hyphen;defibrillator ( <i> P  </i>  = .028). On multivariable modeling, only the number of cardiac surgeries was found to correlate with HKCS.</div><div class="line" id="line-264"> Conclusions</div><div class="line" id="line-266"> While univariate correlations were found between HCKS and several other clinical and psychological variables, only number of prior cardiac surgeries independently correlated with disease&hyphen;specific health knowledge in ACHD patients. These results suggest that clinical and psychological variables are not impediments to disease&hyphen;specific health knowledge.</div>

Original language	American English
Journal	Congenital Heart Disease
Volume	13
DOIs	https://doi.org/10.1111/CHD.12668
State	Published - Sep 27 2018

Keywords

adult congenital heart disease
disease‐specific health knowledge
psychology in adult congenital heart disease

Disciplines

Critical Care
Internal Medicine
Medicine and Health Sciences

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10.1111/CHD.12668License: Unspecified

Cite this

@article{833ade5c60524ac99392461e612b8441,

title = "Contributors to disease-specific health knowledge in adults with congenital heart disease: A correlational study.",

abstract = " Objective Growth in the adults with congenital heart disease (ACHD) population represents a challenge to the health care infrastructure. As patients with chronic disease are increasingly held accountable for their own care, contributors to disease&hyphen;specific health knowledge, which are known to correlate with patients' participation in care, merit investigation to design patient&hyphen;focused interventions. Design We conducted a single&hyphen;site, cross&hyphen;sectional study of ACHD patients. Investigators retrospectively gathered clinical data as well as psychometric and health status assessments completed at the time of enrollment. Outcome Measures We investigated the impact of clinical and psychological variables on Leuven Knowledge Questionnaire for Congenital Heart Diseases health knowledge composite scores (HKCS). Variables with significant associations were considered in a stepwise multivariable regression model to determine which combination of variables jointly explained variability in HKCS. Results Overall HKCS was associated with the number of prior cardiac surgeries ( r   = 0.273; 95% CI: 0.050&hyphen;0.467;  P   = .016), perceived stress ( r   = 0.260; 95% CI: 0.033&hyphen;0.458;  P   = .024), SF&hyphen;36 emotional well&hyphen;being ( r  = −0.251; 95% CI: −0.451, −0.024;  P   = .030), history of noncardiac surgery ( P   = .037), cirrhosis ( P   = .048), and presence of implantable cardioverter&hyphen;defibrillator ( P   = .028). On multivariable modeling, only the number of cardiac surgeries was found to correlate with HKCS. Conclusions While univariate correlations were found between HCKS and several other clinical and psychological variables, only number of prior cardiac surgeries independently correlated with disease&hyphen;specific health knowledge in ACHD patients. These results suggest that clinical and psychological variables are not impediments to disease&hyphen;specific health knowledge.",

keywords = "adult congenital heart disease, disease‐specific health knowledge, psychology in adult congenital heart disease",

author = "Joshua Saef and Sandeep Sodhi and Tecson, {Kristen M.} and Rashida, {Vanessa al} and Ko, {Jong Mi} and White, {Kamila S.} and Ludbrook, {Philip A.} and Cedars, {Ari M.}",

note = "Growth in the adults with congenital heart disease (ACHD) population represents a challenge to the health care infrastructure. As patients with chronic disease are increasingly held accountable for their own care, contributors to disease‐specific health knowledge, which are known to correlate with patients' participation in care, merit investigation to design patient‐focused interventions.",

year = "2018",

month = sep,

day = "27",

doi = "10.1111/CHD.12668",

language = "American English",

volume = "13",

journal = "Congenital Heart Disease",

}

TY - JOUR

T1 - Contributors to disease-specific health knowledge in adults with congenital heart disease: A correlational study.

AU - Saef, Joshua

AU - Sodhi, Sandeep

AU - Tecson, Kristen M.

AU - Rashida, Vanessa al

AU - Ko, Jong Mi

AU - White, Kamila S.

AU - Ludbrook, Philip A.

AU - Cedars, Ari M.

N1 - Growth in the adults with congenital heart disease (ACHD) population represents a challenge to the health care infrastructure. As patients with chronic disease are increasingly held accountable for their own care, contributors to disease‐specific health knowledge, which are known to correlate with patients' participation in care, merit investigation to design patient‐focused interventions.

PY - 2018/9/27

Y1 - 2018/9/27

N2 - Objective Growth in the adults with congenital heart disease (ACHD) population represents a challenge to the health care infrastructure. As patients with chronic disease are increasingly held accountable for their own care, contributors to disease&hyphen;specific health knowledge, which are known to correlate with patients' participation in care, merit investigation to design patient&hyphen;focused interventions. Design We conducted a single&hyphen;site, cross&hyphen;sectional study of ACHD patients. Investigators retrospectively gathered clinical data as well as psychometric and health status assessments completed at the time of enrollment. Outcome Measures We investigated the impact of clinical and psychological variables on Leuven Knowledge Questionnaire for Congenital Heart Diseases health knowledge composite scores (HKCS). Variables with significant associations were considered in a stepwise multivariable regression model to determine which combination of variables jointly explained variability in HKCS. Results Overall HKCS was associated with the number of prior cardiac surgeries ( r   = 0.273; 95% CI: 0.050&hyphen;0.467;  P   = .016), perceived stress ( r   = 0.260; 95% CI: 0.033&hyphen;0.458;  P   = .024), SF&hyphen;36 emotional well&hyphen;being ( r  = −0.251; 95% CI: −0.451, −0.024;  P   = .030), history of noncardiac surgery ( P   = .037), cirrhosis ( P   = .048), and presence of implantable cardioverter&hyphen;defibrillator ( P   = .028). On multivariable modeling, only the number of cardiac surgeries was found to correlate with HKCS. Conclusions While univariate correlations were found between HCKS and several other clinical and psychological variables, only number of prior cardiac surgeries independently correlated with disease&hyphen;specific health knowledge in ACHD patients. These results suggest that clinical and psychological variables are not impediments to disease&hyphen;specific health knowledge.

AB - Objective Growth in the adults with congenital heart disease (ACHD) population represents a challenge to the health care infrastructure. As patients with chronic disease are increasingly held accountable for their own care, contributors to disease&hyphen;specific health knowledge, which are known to correlate with patients' participation in care, merit investigation to design patient&hyphen;focused interventions. Design We conducted a single&hyphen;site, cross&hyphen;sectional study of ACHD patients. Investigators retrospectively gathered clinical data as well as psychometric and health status assessments completed at the time of enrollment. Outcome Measures We investigated the impact of clinical and psychological variables on Leuven Knowledge Questionnaire for Congenital Heart Diseases health knowledge composite scores (HKCS). Variables with significant associations were considered in a stepwise multivariable regression model to determine which combination of variables jointly explained variability in HKCS. Results Overall HKCS was associated with the number of prior cardiac surgeries ( r   = 0.273; 95% CI: 0.050&hyphen;0.467;  P   = .016), perceived stress ( r   = 0.260; 95% CI: 0.033&hyphen;0.458;  P   = .024), SF&hyphen;36 emotional well&hyphen;being ( r  = −0.251; 95% CI: −0.451, −0.024;  P   = .030), history of noncardiac surgery ( P   = .037), cirrhosis ( P   = .048), and presence of implantable cardioverter&hyphen;defibrillator ( P   = .028). On multivariable modeling, only the number of cardiac surgeries was found to correlate with HKCS. Conclusions While univariate correlations were found between HCKS and several other clinical and psychological variables, only number of prior cardiac surgeries independently correlated with disease&hyphen;specific health knowledge in ACHD patients. These results suggest that clinical and psychological variables are not impediments to disease&hyphen;specific health knowledge.

KW - adult congenital heart disease

KW - disease‐specific health knowledge

KW - psychology in adult congenital heart disease

UR - https://onlinelibrary.wiley.com/doi/10.1111/chd.12668

U2 - 10.1111/CHD.12668

DO - 10.1111/CHD.12668

M3 - Article

VL - 13

JO - Congenital Heart Disease

JF - Congenital Heart Disease

ER -

Contributors to disease-specific health knowledge in adults with congenital heart disease: A correlational study.

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